ALS Patients’ Socio-Ecological Resilience and Self-Determination for Life-Sustaining Treatments: A Mixed Methods Study

Date/Location:

January 4 – February 15, 2021

Description:

About 10-15% of people with ALS (pALS) get tracheostomies, and only 35-40% of those procedures are planned, suggesting that many pALS’ decisions for life-sustaining treatments are not fully self-deterministic. This dissertation study examines how pALS’ socio-ecological resilience is related to their self-determination for life-sustaining treatments. I have employed a cross-sectional correlational mixed-methods research design. In collaboration with the National ALS Registry, I have randomly selected and recruited approximately 200 pALS to complete an online survey. I will combine descriptive and inferential analysis, including multiple and logistic regressions, with thematic analysis, and examine the data using side-by-side comparison for points of convergence and divergence. I expect to find how pALS’ socio-ecological resilience is related to their self-determination for life-sustaining treatments.

Speakers:

Jeremy Van Tress, PhD, CSWA

Learning Outcomes:

Define socio-ecological resilience and self-determination and contextualize the terms with my study and its research design

Describe my study’s findings concerning the relationship between socio-ecological resilience and life-sustaining treatments of people with ALS

Justify how strength-based interventions and resources increase resilience and maximize self-determination for life-sustaining treatments

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CEUs This activity is offered for up to 0.1 CEUs (1.0 hour of instruction). To register for CEUs:  

Download and complete the following forms.

Save the files names: 2021_ALSA4_Lastname_Firstname

Send both files to ceus@aacinstitute.org

Upon completion of the two forms and passing the quiz, a CEU certificate will be sent

Note: If any difficulty is encountered in using this form, write to ceus@aacinstitute.org to request an alternative file format.